Sunday, March 14, 2010

Perfecto!!


Thursday we had Emma's CT scan. She did incredibly well not eating after midnight. I honestly expected a crying fest but she didn't really cry too much at all. She would get just a little fussy but seemed to be satisfied with her pacifier. Everyone at NorthEast was so nice and understanding. We couldn't go back into the CT with her so it was a little difficult turning our baby over to someone else. They did sedate her with some gas and then put a little IV in for contrast. We asked for a CD of the scan (thanks to Lauren for telling us to do that!). Not only did they give us the CD but they also gave us the report.


I should mention here that we have truly been blessed this past month with a very special doctor. One of my former coworkers mentioned her brother in law was a peditrican and would love to help us. I called and talked to him a couple weeks ago about my concerns. He was so helpful in explaining to me exactly what the neurologist was looking for and what exactly cranial binding is. He offered to meet with us about Emma - no cost, no insurance, just plain ole niceness. When I got the report back I called him to give him the report and scheduled to meet up with him Saturday. He explained that Emma showed no symptoms of Craniosytnois - which was excellent news! She showed different symptoms which eluded to macrocelphy. Basically, macrocelphy means a big head that is 2 standard deviations above normal for age, race and gender. The doctor explained to us this wasn't anything at all to worry about because most babies have big heads...they just have to grow into them!! Insert BIG, BIG, BIG sigh of relief here!!! He also took a look at Emma's head shape. Hai and I have been really going back and forth about the Doc Band/helmet for Emma. The thought of Emma having to wear a helmet in the summer and probably loose hair (more hair than a baby already does), sweat underneath the helmet, and possibly get rashes is completely unappealing to me. The only way I would do it is if I was for sure with no doubt the helmet was the only way to help Emma. The doctor felt like we should really just wait and see how Emma continues to progress. He said he thought Emma's head shape looked okay. He noticed some asymmetry but thought as Emma starts to sit up more her face will naturally fall into place. He said in his medical opinion he thought she was "Just Perfect!" Insert HUGE, HUGE, HUGE, HUGE sigh of relief here!!!
Throughout this whole process Hai and I have really worried we were not getting the proper guidance from Emma's doctors. All we wanted was a doctor to sit down and honestly explain what all is going on. The peditrician we were seeing wanted to pass the buck and not offer any opinion. The neurologist simply didn't offer an opinion on the Doc Band (other than to say "It can't hurt.) and expressed huge concern about Emma's large head - which at this point I feel she acted in the best interest of Emma but shouldn't have scared us to death in the process!! Needless to say, we are so thankful this doctor has entered our lives!!
I am so excited to move forward and put all of these worries behind us!

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